Do I have a special needs child?


Joey after his surgery, almost 5 months old

Do I have a special needs child? The short answer is: I don’t have a damned clue. I’m not even sure what special needs means anymore. I know that when people ask questions about my child, they want to know exactly what the problem is, and that it’s been solved. I’d love to know that, too.

My son, Joey,  is 7 months old. He’s our third child, and since the beginning he’s been an adventure. During his first bath, I watched as he stopped breathing. Doctors, nurses and medics rushed in. Soon after, he was in the neonatal intensive care unit. A few days there, and a few more in the hospital room with us, and we took him home. About a week or so later, he was admitted to the hospital for “failure to thrive.” Simply put, he was losing weight. He had low muscle tone. Tests, tests and more tests. The first thing they hit us with was that he exhibited symptoms for Prader-Willi Syndrome. Googled that. Panic.

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